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In an instant lives are changed forever, with Stem Cell Research we can turn back time. It's too late for us, but there are millions of others that need this. Do your own research, make up your own mind, don't depend on what others say, and imagine your life in a wheelchair full of pain with no hope of ever dancing again.
If you choose not to decide, you still have made a choice.

Still here

We were almost outa here yesterday evening. Discharge papers in hand, kid in the chair, wheeling down the hall. And as we got into the elevator he started acting funny, confused again. I turned us around and went right back to the nurses' station. They readmitted him, put him right back in the same bed. Thank God they did. He rapidly got less and less coherent and then started seizing again. About 2 hours to get it to stop, poor drug management. He even told them they weren't doing their job. Totally out of it all night and still pretty wacky. Gets TV and reality mixed up.
They're transferring him to another hospital for some additional testing as soon as a bed opens up. But his EEG wasn't encouraging. This means some real changes in all our lives, as he can no longer live alone.
Honestly, this is almost more than I can handle. 4 years ago we did this, and in the last 4 years have dug out of that pit and created a new "normal". How much more will be thrown at him? At us?
On the bright side, I'm probably 8 pounds lighter than I was Saturday morning. Bad joke, I know. And I have a box from Fabricmart that I haven't even opened. It has a sild bundle in it that is still a surprise.

14 comments:

  1. I know what this is like--well not exactly this, but similar situations. And although this might seem odd from an "on-line acquaintance", I am local so I want you and your family to know if you need anything, I am here. Even if it is someone to vacumn and do dishes so you come home to a clean house, or a deliver of chocolate chip cookies, or a sewing room in another house that you can retreat to when it gets to be so much, I am here. Please know you can ask and don't be afraid to. So many "strangers" were there for me when I needed it, and I have a deep desire to pay it forward.....

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  2. Hell, BB, I just got home and was picking up the phone. I'm going to take dogs out a min and call, if I don't reach you, call me when you have a signal. Home rest of day except to run get mail later. K

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  3. I so hope it all gets figured out quickly, that all will be ok, and that whatever is thrown your and his way will be manageable! Take the offers of help from these ladies who live near you.

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  4. So ironic. The word verification for my above post was "HOPED" Usually it's just a jumble of letters. HOPE is sent your way.

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  5. So sorry about your son's situation. Definitely enlist help when you need it, and don't try to go this alone. Best wishes to your son and his family as well.

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  6. Beebee I am so sorry for your son's set back.. Hopefully its is just his med adjustments..and they can get them right.. You are and your family are in my prayers..

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  7. Putting you and your family in the prayer circle. Sending you hugs.

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  8. BeeBee, I know this is disappointing news for all concerned. It must be hard for your son to deal with a lack of independence at his age, and hard for you and your DH as well. At least he has you all that he can go to, which has to be a good thing? Take care.

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  9. i have no words of wisdom and I can't say that I've been in your shoes...but know that you and your family will be in my thoughts and prayers.

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  10. This must be so tough. I hope it can be sorted out quickly for you.

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  11. It seems such faint comfort, all of us wishing you well, but that is all we can do, those of us who live on the other side of the country or the world, as I do. So just all good wishes for at least some pockets of calm and faith in the coming days - Susan (Canberra, Australia)

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  12. Beebee I am so sorry to hear that this painful weekend continues.

    BetsyV

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  13. Oh, geez, this is crummy. Keeping you and your family in my thoughts.

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  14. This is the first I've connected up with your blog, and tho I don't know completely what is going on, I know it's difficult and ask for God's comfort and strength for you. I read a few blogs back, and your one about Mother's Day really hit home! My mother died Christmas of 1989, but my father also died on Mother's Day, last year. Two holidays I certainly will never forget! Years ago I resolved not to attend church on Mother's Day. I have no mother and both of my children and three grandchildren live great distances away, so I look around and see all these women surrounded with mothers, children, and grandchildren and I cannot contain myself. I do NOT like to cry in public so I do my best to not put myself (and my husband) in that position. Like you,I do not begrudge the family gatherings and celebration of others,but acting like it's "just another day" is one of the best ways I have of coping. I do hope all your present difficulties resolve themselves in an expedient and surprisingly good way.

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